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September 26, 2021

Dad Was Hit 'Pretty Hard' When His Baby Was Diagnosed with a Rare Condition and Now They Share the Scars

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Fathers are known for sharing a special bond with their daughters, and this couldn't be more true for Zeb and Charlotte Misko. The daddy-daughter duo battled the same disease, 29 years apart. 

A daddy's love for his daughter is unlike any other and embodies his genuine sentiments and unconditional affection. Zeb Misko's entire world was shaken apart when his little bundle of joy was diagnosed with a rare brain disease. 

The 1-year-old baby Charlotte suffered from a rare condition called craniosynostosis, which was diagnosed after she was born. According to the Cleveland Clinic, only 1 in 2000 children is likely to be affected by this rare condition.

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Zeb was also diagnosed with the same condition in his childhood, but he doesn't remember his journey of battling the disease. The scar behind his ear is the only reminder of him surviving craniosynostosis. According to CDC:

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“If the condition is not treated, the build-up of pressure in the baby’s skull can lead to problems, such as blindness, seizures, or brain damage.”

Craniosynostosis is characterized by the bones in a baby's skull joining together, which prevents the brain development of the child. Baby Charlotte received the same treatment as her dad, and the two now bear matching surgical scars. 

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As a father, Zeb experienced a lot of stress given his daughter's health. He never expected Charlotte to be diagnosed with the same disease he had battled almost 30 years back but knew he had to stay strong for the sake of his daughter. He said: 

"When we got the diagnosis, it definitely hit us pretty hard. It hit me pretty hard also."

However, given his own experience of fully recovering from the rare condition, Zeb was positive that Charlotte, too, would come out stronger and have no recollection of what she underwent other than the scar behind her ear.

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Zeb has five other siblings and is the oldest among them. However, he was the only one who suffered from the disease, and none of his siblings or other family members were ever diagnosed with it. He also added: 

"I guess it was just in the back of our heads that, okay, this is a possibility, but didn't give it too much thought."

Growing up, Zeb never faced any issues. Because he had no recollection of surviving the condition, he nearly ruled out the possibility of his daughter being affected until the diagnosis was made. 

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Zeb's wife and Charlotte's mother, Bethany, is also glad that her husband and daughter are both doing perfectly fine. However, she plans on taking her baby for yearly check-ups with a neurosurgeon to ensure she's on the right track. 

Charlotte's parents love her with all their hearts and consider her one of the best babies they could have wished for. It's indeed moving to see this daddy-daughter duo emerge victorious after beating the same disease and sharing matching scars. 

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