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October 18, 2021

Mother Told Daughter Was Born Blind and Unable to Be In the Sun Refuses to Give Up on Her

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Hailey and Chayd Brown are parents to two legally blind daughters with Albinism, yet they navigated through life well and gave their kids the best life possible.

Parents always want the best for their children, no matter how difficult that may be. But when Hailey and Chayd Brown had their first daughter, they didn't think that the challenges would be for a lifetime.

Hailey and Chayd were high school sweethearts who welcomed their firstborn at the age of 17. Although young, the couple received support from their families and worked on financing their family.

Hailey Brown's children, Arliyah, Raegan, and Mackenzie. | Source: instagram.com/snowwhite_sisters

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MEETING BABY ARLIYAH

On August 27, 2012, Hailey gave birth at 35 weeks pregnant. Naturally, her daughter had to be cared for in the Neonatal Intensive Care Unit (NICU) because of premature birth. As soon as Hailey saw her child, she noticed Arliyah's light hair. She shared:

"Chayd and I had super blonde hair as young kids so it wasn't a shock for me to see how white Arliya's hair was."

But it turned out that Arliyah's white locks were more than just a resemblance to her parents' hair. She had Albinism and impaired vision that classified her as legally blind. In addition, she was sensitive to light.

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THE HARDEST MONTHS

The first 12 months were the hardest for Hailey. She wanted to keep her daughter by her side every hour and refused help from others. "I pretty much stopped all contact with the outside world, lost many friendships, and annoyed a lot of my family," she admitted.

She was also quite in denial of her daughter's condition and always felt terrible when someone commented on Arliyah. At times, Hailey would be in tears because of the world that sees her daughter as different.

One day, her father hit her with the truth and said, "Hailey, she is going to have this for the rest of her life. You have to find a way to accept it and deal with the comments."

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ACCEPTING ARLIYAH'S FATE

Slowly, Hailey began to accept her daughter's condition and reached out to other families who had the same experience with Albinism and visual impairment.

Hearing stories of others gave Hailey much hope for her daughter, and soon she began going to therapy with Arliyah. Despite her disability, Arliyah grew up to be a strong and adventurous girl. 

She fell in love with Muay Thai and did well in the sport despite her visual impairment. Going to school was also a challenge she learned to overcome, but what brought her most joy was having siblings to navigate life with.

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WELCOMING MORE KIDS

On August 14, 2014, Haily gave birth to their second child, Reagan. During her pregnancy, the doting mom knew that he wasn't going to have Albinism, but the same couldn't be said when she had her third child.

Since Hailey and Chayd carried Albinism in their genes, there was always a 25% chance their child would be an albino. So on September 10, 2016, they welcomed another child with Albinism, Mackenzie.

The couple has been happily living their lives with their kids despite their condition. In addition, their two girls have a strong bond and share the same experiences with Albinism.

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Sadly, despite them being legally blind and sensitive to the sun, Australia's Department of Tourism does not consider their kids disabled enough to be granted parking permits.

Arliyah and Mackenzie are not the only two albino sisters that have made headlines. Previously, Asel and Kamila Kalaganova also gained attention for their distinct beauty. As the two sisters joined the modeling industry, they shed a more positive light on Albinism.

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