February 10, 2019

Mom of 4 sings ‘Amazing Grace’ to husband days before he dies from mad cow disease

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Only days before her husband died from "human form of mad cow disease," Danielle Gibson sang his beloved song "Amazing Grace".

On January 30, Tony Gibson, 33, of Lebanon, Tennessee, passed away at a nursing home in Hendersonville after he was diagnosed with Creutzfeldt-Jakob Disease (CJD). Three days before he died, his wife Danielle is seen singing "Amazing Grace" to him, as reported by Daily Mail.

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As a major aspect of Tony's treatment, doctors gave him steroids, but his condition has just deteriorated.

"Singing his favorite hymn has such a calming affect #AmazingGrace #CureCJD," Danielle captioned the Facebook video that has been viewed over 28,000 times.

Tony, an iron worker, noticed a deterioration in his cognitive skills in December 2017. He began forgetting how to get around his home.

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Danielle told Daily Mail, "He would say: 'I'm going to the bathroom' and I would say: 'That's not the bathroom'. So I started labeling every room in the house. And that lasted about a month until he couldn't read anymore."

Four months after the symptoms showed up, Danielle and Tony, who have four children — two sets of twins aged 11 and 2, decided to visit Vanderbilt University Medical Center in Nashville. 

Danielle was convinced he had dementia - a general term that depicts a group of symptoms related to a decline in memory or other thinking skills extreme enough to lessen an individual's capacity to perform regular activities.

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However, in May 2018, after about a month of testing, doctors diagnosed Tony with CJD - the so-called "human form of mad cow disease."

CJD is a rare, degenerative brain disorder that affects over 300 people in the United States every year. It is brought about by coming into contact with tissue that has been tainted, for example, eating polluted meat.

According to the Centers for Disease Control and Prevention, the “disease is rapidly progressive and always fatal.”

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As a major aspect of Tony's treatment, doctors gave him steroids, but his condition has just deteriorated. He was then moved into a nursing home in Hendersonville where his wellbeing quickly weakened. 

The mother-of-four said that although she knew Tony would die, she's still struggling to deal with the passing. 

After her husband's demise, Danielle donated his brain to the CJD Foundation. She has also set up a GoFundMe page to help cover medical expenses.

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