Alex Dacy the ‘Wheelchair Rapunzel’ Shares Body Positive Messages About Disability

The 25-year-old blogger defied odds to beat her genetic disease and is now using her experience to inspire millions of people with disability.

Chicago’s Alex Dacy was diagnosed with spinal muscular atrophy at her birth. The condition caused muscle wasting and mobility problems, and the doctors estimated that she would not live for more than two years.

Now, 25 years later, she is not only proving the medical experts wrong, but she is also using her condition to motivate other people who are concerned about their body image.

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The past two weeks have been a huge struggle bus. I try to keep things upbeat but I wanted to share with you that while I pride myself on living an independent and happy life, behind the scenes, I do get tossed curve balls. I was pretty sick for a while which mentally and physically exhausts me. I’ve also been in the process of hiring new PA’s / caregivers and that transition is challenging and exhausting. Today my only PA I had available was my mom meaning that I had zero help from 7am until 5pm & yes that means no peeing for nearly 9 hours. To be honest, it was not as bad as I anticipated but it’s draining. I feel vulnerable sharing that, but hey, shit happens. All this is happening while I’m working on several projects, trying to live my best life, and run my business that has been really growing. I’m not trying to whine or get sympathy. But, this is what my life looks like behind closed doors and pretty Instagram photos. Situations like this just make me more driven and thirsty to live my life even better than before. It makes me appreciate the things I do have and how lucky I am even if I’m going through a rough patch. What distracts me is my work & seeing your orders and growing my business AND reading all your beautiful messages. Thank you all for being you and cheering me on always 🌈

A post shared by Aℓex Dacy | ♿︎Blogger (@wheelchair_rapunzel) on

Dacy, also known as “Wheelchair Rapunzel,” stated in a video, titled “Born Different,” that “people with disabilities can feel sexy in their bodies…” and that they must be represented in the positive body image movements that have increased in the recent times.

To ensure that people with disabilities feel sexy in their bodies and to promote a culture of positive body image, Dacy started flaunting her body in fashionable outfits through her Instagram account.

“There is a body positivity movement happening today and it’s so important for people with disabilities to be represented in this,” Dacy said in the video.

Dacy explained that the lack of representation of people with disabilities in such movements inspired her to start her own movement on social media.

On her Instagram account, Dacy has received thousands of comments and likes, which is an encouragement not just to her but also to countless other people with disabilities, who may be struggling with body image issues.

Among her snapshots, some feature her wearing bold and revealing dresses while in a few others she is almost nude with body positive messages written on her body.

Dacy also opened up some of the misconceptions surrounding people with disabilities in the video.

The notion that people like her “don’t feel sexy” or “have romantic relationships” were some of the most common misconceptions, as explained by Dacy.

According to the Muscular Dystrophy Foundation, Australia, Spinal Muscular Atrophy, or SMA, is a genetic disease that affects the part of the nervous system responsible for voluntary muscle movement.

As it damages nerve cells called motor neurons, it is classified as a motor neuron disease. The condition may occur in many different forms but it is mainly caused by a deficiency of a protein called SMN (Survival of Motor Neurons). 

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💜NEWS💜 A few months ago I had the honor of filming a mini-documentary about my disability, self-love, body-positivity, & my online shop for BBC3 & Barcroft Media. It went live on BBC3 about an hour ago & it’ll be on Barcroft next month 💕 I’m so freaking happy with how it came out bc I was nervous as hell filming! I made the mistake of reading some of the comments on the video lol I’m not going to be reading anymore bc people are just horrible humans sometimes. I hope y’all love it!!!!! Feel free to share & let me know what you think in the comments❤️ Also, have I made it yet!?! 😜 Wanna help me celebrate this pretty big milestone!?! You can order something from my shop to celebrate inclusion, self-love, body positivity, and more of my disabled booty to come 🌈 Link in bio

A post shared by Aℓex Dacy | ♿︎Blogger (@wheelchair_rapunzel) on

People like Dacy may be rare, but she is definitely not alone in becoming an inspiration for millions of people around the world despite having a disability.

Previously, Daniel Romanchuk also achieved the inspirational feat of becoming the first US man to win the NYC Marathon at the young age of 20. 

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