logo

Mother's heartbreak over two-year-old toddler's dementia diagnosis

author
Aug 22, 2018
11:55 P.M.

The mother was devastated by the diagnosis doctors gave her two-year-old son, but said she will make the most of the time she has with him.

Advertisement

Rebecca Griffiths from Knutton, Staffordshire, has three children. She became concerned when her two-year-old son Reggie developed incredibly slowly and took him to a doctor.

Instead of being told he was just learning slowly, she received the news that her little boy suffers from Sanfilippo syndrome, a disease that is also referred to as "childhood dementia."

The condition is often characterized by broad noses and big foreheads, which helped lead to Reggie's diagnosis. Children diagnosed with this disease don't live past 20 years old.

Read more on our Twitter account, @amomama_usa.

Advertisement

Griffiths has been warned that her son's brain is very damaged, so she may have even less time with him than 20 years. She said:

“Me crying or falling apart won’t help him, I want to make the most of him while he’s with me.”

The tot is in the third stage of the illness, which is characterized by hyperactive, non-verbal behavior. The third stage involves rapid deterioration, and once this phase sets in sufferers won't have long left to live.

Griffiths explained:

Advertisement

"The body shuts down and then he will forget everything he has learned. When people ask me to explain it the best way is its like dementia in a child.”

The disease affects approximately just one in 70,000 children.

Griffiths also has to worry about her son's breathing, as the disease can cause "very big tonsils and a thin airway," and problems with the heart's valves.

She added:

“I don’t think he will ever learn to talk. He is a very happy child though and is just lovely but I don’t think I’ll ever hear the sound of his voice.”

She has since started a fundraiser for the condition in the hopes that science will one day be able to find a cure for future children, even if it will be too late to save Reggie.

"I hope one day they will and someone will be able to say ‘my child used to have that,’” she said.

Advertisement
info
Please fill in your e-mail so we can share with you our top stories!
By subscribing, you agree to our Privacy Policy
Advertisement
Related posts

Fans Want Bruce Willis Left Alone after His Daughter Showed a Photo Holding His Hand: ‘So Painful to See’

November 27, 2023

Wendy Williams Son Fights to Save His Mother amid Her Aphasia Diagnosis – Inside Their Relationship

February 23, 2024

Inside Wendy Williams' Health Struggles: From a Public Faint to Fighting Chronic Illness for 2 Decades

February 23, 2024

Bruce Willis' Wife Says She Struggles with 'Guilt' amid His Battle with Dementia – She Explained

November 15, 2023

Bruce Willis Spotted Riding a Car in Rare Public Sighting amid His Battle with Dementia

November 20, 2023

Man and Woman on a Blind Date Surprised to Find Their Kids are Mirror Images of Each Other – Story of the Day

April 30, 2024

Demi Moore Makes Rare Comment about Caring for Those with the Same Illness as Ex-husband Bruce Willis

January 31, 2024

People Beg Proud Mom to Stop Showing Her Son's Photos

November 03, 2023

Mom Eats a Full Bottle of Baby Powder a Day & Concerned Her Son Might Adopt Her Habit – 'I Can't Just Stop'

February 11, 2024

Fans Empathize as Bruce Willis’ Daughter Posts Nostalgic Pic with Dad Whose ‘Language Skills Are No Longer Available’

November 21, 2023

Jay Leno Files for Conservatorship over Wife's Estate after They Were Seen in Public Last Time – Photos

January 27, 2024

5 Celebrities Who Revealed They Raise Children with Special Needs

April 18, 2024

Colin Farrell Is the Father of Two Sons, One of Whom Has 'Special Needs' — A Look at Him as a Dad

May 01, 2024

Bruce Willis’ ‘Big Gang of Women’ Found a Brighter Side amid His Worsening Health — Updates

December 06, 2023