September 16, 2021
Six-year-old Zola had a near-death experience when she began hemorrhaging at home for ten days and claimed she spoke to God while passed out.
When Brittani Tomic was pregnant with her daughter Zola, doctors told her she was high-risk because she had had previous miscarriages. Although ultrasound showed a choroid plexus cyst in Zola's brain, they ruled out down syndrome and dismissed it as a fluke.
At six months, Tomic noticed that her daughter was not progressing like other kids, and at age two, she began having seizures.
After consulting doctors and ruling out some conditions, they decided to bring her to an ENT for possible sleep apnea. The ENT found that Zola’s tonsils were enlarged and could block her breathing, so he suggested removing them. Tomic shared:
“We were confident. We felt like this was going to be the end of all of her seizures and the medical issues. This is going to be the surgery to fix everything.”
However, things only went downhill from there. Over a week after surgery, Zola went to her parents with blood in her mouth. They later found that she had been hemorrhaging and needed an emergency blood transfusion.
“They weren’t sure what was going on,” Tomic added. “They were like, ‘Just so you know, the blood is already in the waiting room for her ready, and we’re gonna do everything we can to save her cause her blood levels were so low at that point.”
Fortunately, Zola survived and was sent home a few days later. At three years old, doctors diagnosed her with Ehlers-Danlos syndrome, a rare condition that affects tissue connectivity in the body.
According to Tomic, Zola’s condition will make her bruise easily and experience pain and fatigue. Although it is not life-threatening, it may have severe complications.
While their family was relieved to know what was wrong with Zola, something surprised them when the little girl opened up about her illness. Tomic shared:
“I was getting her ready, and it wasn’t even like we were talking about anything God-related beforehand [...] she just asked, ‘When can I see God again?’”
Surprised, Tomic asked her daughter when she saw God, to which Zola replied, “the night I died.” According to the six-year-old, God hugged her and still talks to her.
Another mom opened up about her daughter’s rare genetic condition, Sanfilippo syndrome, a type of Alzheimer’s disease for kids.
With everything that had happened, Tomic felt a calling to start a non-profit organization, Zola’s Zebras, to raise awareness and help other children with EDS.
Recently, another mom opened up about her daughter’s rare genetic condition, Sanfilippo syndrome, a type of Alzheimer’s disease for kids.
Mom Brittany Lagarde shared how she found out about her daughter’s illness while at work and how it has been for their family.
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