Parents were expecting heartbreak and were gifted with a miracle.
Lee and Francesca Williams couldn't have been happier. They were blessed to welcome their beautiful daughter Bella and at first, everything seemed fine with the baby.
Just 18 months later they were posting a photo on Facebook, kissing their beloved daughter goodbye.
When Bella was 14-months-old, her hair started falling out in clumps, and she couldn't hold herself upright in her high chair.
The Williams took Bella to the doctor, but tests failed to identify a problem. Doctors thought she might be suffering from asthma, and Bella was prescribed an inhaler.
“I was holding her hand knowing there was going to be a little last breath. I could feel her hand dropping and it went down, but then she started gripping my finger.”
Lee Williams, Daily Mail
Then, while the family was on holiday, Bella's condition deteriorated. Doctors uttered a frightening diagnosis: Bella had a mitochondrial disease, a deadly metabolic disorder that affects the body's ability to convert food into energy.
Bella was placed on life support in a children’s hospital in England and her condition became progressively worse.
The Williams were asked to make a decision: Take Bella off life support, say goodbye to their precious baby.
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Rather than seeing their daughter in such agony, they agreed and signed a “do not resuscitate” agreement.
Together they kissed her goodbye then turned off the ventilator. But little Bella was about to give even the doctors a surprise.
She started kicking and screaming, and the astonished doctors lept into action, disregarding the “do not resuscitate” agreement.
A miracle happened, and Bella survived. The doctors discovered she was suffering from Biotinidase deficiency which is treatable, and Bella pulled through.
Biotinidase deficiency can be fatal if left untreated; but with the proper medication, Bella was soon on the mend, and is now a healthy and happy little girl.
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