facebook.com/John F. Crowley
facebook.com/John F. Crowley

Doctors Say Their Baby Won't Live past Two, So Dad Creates a Drug to Save Her Life

Brittany Chalmers
Jan 08, 2022
01:55 A.M.

When his daughter was given a death sentence shortly after being born, one father refused to accept the news. He created a drug to fight her disease, and she survived against all odds.


At only 14 months old, Megan Crowley was diagnosed with a rare disease called Pompe. Doctors told her parents, Aileen and John, that she would not live past two years old.

This was something they did not accept. Megan's determination to live surprised doctors and her father's decision to create a new drug saved her life. John co-founded Novazyme Pharmaceuticals, and the company has done great work.

After doctors told a father his baby was going to die, he created a drug to save her life and now she has graduated from college | Photo: Facebook/John F. Crowley

After doctors told a father his baby was going to die, he created a drug to save her life and now she has graduated from college | Photo: Facebook/John F. Crowley



John managed to raise millions of dollars in his efforts to get the drug up and running, and the family's story was turned into a book and a movie. Harrison Ford starred in the film "Extraordinary Measures," which documented the Crowley journey.

However, despite the widespread coverage, Megan's views were never featured. This prompted her to start her own blog, High Heeled Wheels. She uses the platform to encourage other disabled people.



Megan shared that she loves to prove people wrong. Many times in her life, people have underestimated her, and she expressed: "No is not a word that I like to hear; it's not in my vocabulary."

The young woman graduated from high school and even obtained a double major in Film, Television, Theater, and American Studies. Megan is also involved in various aspects of her university, including the Make-A-Wish club.



Megan is an inspiration to everyone who meets her; even her teachers say they learn from her. Megan cannot breathe or walk on her own, but she still manages to get by. She stated that she does more than survive, and she is living her best life.

The young woman has many plans for the future. Not only does she want to work for the Muscular Dystrophy Association or the Make-A-Wish foundation, but she also wants to get married.



Megan also shared that she dreams of having two children with the help of surrogacy and another two via adoption. She expressed that her mission is to tell others with disabilities that their condition is not a death sentence.

Megan said: "You can live with disabilities, and that you can have a happy life." This message has encouraged many and online users often praise her for her determination and motivation.



One user thanked the family for all that they had done. The user said: "Because of what this family did & how hard they have pushed for so many years, people like me, living with Pompe, have hope for tomorrow!"

Megan is indeed a young woman that has spread lots of positivity in the world. She stated that she simply wants to continue to live a meaningful life filled with happiness, and so far, she is getting it right.

Please fill in your e-mail so we can share with you our top stories!
By subscribing, you agree to our Privacy Policy

The information in this article is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. All content, including text, and images contained on news.AmoMama.com, or available through news.AmoMama.com is for general information purposes only. news.AmoMama.com does not take responsibility for any action taken as a result of reading this article. Before undertaking any course of treatment please consult with your healthcare provider.

Related posts

Grandparents Kick Pregnant Teen Out in the Cold, Years Later They Ask For Her Help — Story of the Day

March 13, 2022

John Travolta's Late Wife Kelly Got Pregnant at 47 & Risked Her Life to Carry Her 'Miracle' Baby

April 14, 2022

After Millionaire Husband’s Death, Old Widow Is Forced to Live In Dirty Old Trailer – Story of the Day

May 23, 2022

Mom Is Told to Give Up Daughter with Down Syndrome — She Becomes a Famous Star Years Later

May 17, 2022

Girl Disappears Day after Grandmother Gifts Her an Extremely Expensive Necklace – Story of the Day

January 31, 2022

Rich Girl Mocks Poor Waiter until He Saves Her Father’s Life One Day – Story of the Day

March 06, 2022

Homeless Man Raises Little Girl He Found in Dumpster for Years until Her Mother Shows Up – Story of the Day

March 03, 2022

Granddaughter Picks up the Phone and Hears Her Crying Grandpa Who Asks Her to Come Over

May 16, 2022

Alison Sweeney Was 'Dying' for 2nd Pregnancy to Be over after 'Crushing' Body-Shaming from Directors & Fans

May 24, 2022

20 Years after Newborn Daughter’s Death, Man Hears, ‘Dad, I Finally Found You’ – Story of the Day

March 05, 2022

Who Is Cara Delevingne Dating? Inside the Actress and Model’s Private Life

May 17, 2022

Bullied Girl Hates Her Burn Scars until Giving Birth to Her Daughter Changes That

April 21, 2022

Selena Gomez Said ‘Different Things’ Inspired Her Matching Tattoo with Cara Delevingne

May 17, 2022

Sons Learn Their Old Mom Gave Her $3.7M Mansion to Young Man Who Isn’t Her Child — Story of the Day

February 18, 2022